Shining a Light on Anti-MDA5 Dermatomyositis
Nori's Fight is dedicated to raising awareness about the rare autoimmune disease that took Nori from us too soon. Our mission is to promote early detection and advancements in treatments for Anti-MDA5 Dermatomyositis and Interstitial Lung Disease. With your support, we aim to raise awareness and fund vital research efforts.
Who is Noriel?
Nori lived by the motto, "If you're not living on the edge, you're taking up too much space." He embraced life fully, filling each moment with joy for those around him.
He excelled in every aspect of life: uplifting friends and family, pushing boundaries at work to prioritize innovation, and always making time for fun.
Golf was one of Nori's passions; he could often be found on the course, giving his friends a run for their money—or winning friendly bets, which he usually did.
His immense heart, infectious laugh, and radiant smile brightened every room he entered, leaving a lasting impact on everyone he met. The world is a little dimmer without his light.
Understanding Anti-MDA5 Dermatomyositis
and
Interstitial Lung Disease
Anti-MDA5 Dermatomyositis is a subtype of myositis, causing inflammation in the lungs and other areas. It often leads to rapidly progressive lung disease and currently has a challenging prognosis.
Symptoms can mimic pneumonia, and due to its rarity, diagnosis can be delayed. Our mission is to increase awareness, facilitate earlier detection, and support research into effective treatments, sparing other families from similar struggles.
More Coming Soon
Future Events
Drive for MDA-5 Golf Tournament
Nori's competitive spirit and love for golf make this tournament a fitting tribute and an excellent way to raise funds for our cause.
Annual Tournament
Nori was always up for a challenge or a friendly wager, making this fundraiser a perfect homage to his spirited nature.